PANS & PANDAS: What Parents Need to Know and How to Support Your Child

When your child suddenly changes and starts to present with severe anxiety, tics, obsessive behaviors, or personality shifts, it can feel frightening and confusing. For some families, these sudden changes may be linked to PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections).

These conditions are triggered by infections or inflammation in the body that affect the brain and nervous system. As a member of the PANS Advisory Council (PANSAC) for the State of Texas, I am deeply committed to helping families understand these conditions and access the right support. You can learn more about the Texas PANSAC via the Texas Health and Human Services website here.

What Are PANS and PANDAS?

• PANDAS is specifically linked to strep infections.

• PANS has a broader definition which can include symptoms may follow other infections (like flu, mycoplasma, or even Lyme disease) or immune triggers.

• Both cause sudden, dramatic onset of neuropsychiatric symptoms, most often OCD-like behaviors, tics, extreme anxiety, irritability, food restrictions, and sleep disturbances.

When a child develops PANS or PANDAS, the sudden changes can leave families feeling overwhelmed and unsure where to turn. While every child’s journey is unique, there are some consistent steps parents can take to support healing and stability at home. These strategies combine medical guidance with practical, everyday approaches that strengthen both physical and emotional health.

Trust Your Instincts

You know your child best. If their behaviors changed suddenly after illness, don’t dismiss it as just a phase. Document the timeline of symptoms, illnesses, and any infections. This log can be invaluable for medical providers.

Find a Knowledgeable Provider

Not all doctors are familiar with PANS/PANDAS. Look for pediatricians, neurologists, immunologists, or psychiatrists who specialize in integrative or functional approaches. Bring your notes and advocate for testing and treatment.

Address Infection & Inflammation with Whole-Child Support

Treatment often involves:

• Medical care: antibiotics or antivirals (when infection is present), anti-inflammatory support (ibuprofen, steroids in some cases), or immune-modulating therapies (for severe cases). Always follow medical guidance.

• Lifestyle care: The body’s natural defenses are strengthened by daily habits. Encourage:

  • Nutritious foods rich in protein, healthy fats, colorful vegetables, and anti-inflammatory nutrients (like omega-3s, vitamin D, and zinc).

  • Consistent sleep routines to give the nervous system a chance to reset.

  • Hydration—even mild dehydration can worsen mood and fatigue.

  • Gentle movement (walks, stretching, yoga) to regulate stress and support immune function.

  • Stress reduction practices like deep breathing, journaling, art, or time in nature to calm both body and mind.

Lifestyle doesn’t replace medical treatment, but it can make recovery more effective and sustainable.

Support Emotional and Mental Health

Children may feel scared, out of control, or ashamed of sudden changes. Gentle reassurance helps. Consider working with a therapist experienced in OCD, anxiety, or trauma-informed care. Family therapy can also help parents and siblings cope.

Prioritize Rest & Recovery

Healing takes time. Sleep, balanced nutrition, stress reduction, and gentle daily routines are powerful allies. Avoid overscheduling—your child’s brain and body need space to heal.

Build a Support Network

Connect with other parents who understand. Organizations like the PANDAS Network or ASPIRE offer resources, stories, and advocacy tools. Knowing you’re not alone can reduce isolation and overwhelm.

Awareness and Advocacy

Did you know that October 9th is internationally recognized as PANS/PANDAS Awareness Day?

Here in Texas, a specific event is held annually at the State Capitol on this day. Families, clinicians, and advocates gather to:

• Raise awareness of PANS and PANDAS

• Educate the public and lawmakers about these conditions

• Advocate for better access to treatment and support for affected families

You can learn more about Texas Awareness Day events, resources, and ways to get involved at pandasawarenesstx.org.

Resources for Parents

Learn more, connect, and find support:

• Texas PANS Advisory Council (PANSAC)
  Texas HHS Council Information

• PANS/PANDAS Awareness Day – October 9
  Annual Texas State Capitol event & awareness resources:
  pandasawarenesstx.org

• Parent Support & Advocacy
  PANDAS Network
  ASPIRE

Encouragement for Parents

PANS and PANDAS can feel overwhelming, but many children improve significantly with the right medical and emotional care. You are your child’s best advocate, and early recognition matters. Trust yourself, seek support, and know that healing is possible.

As someone serving on the PANSAC Council for Texas, I see every day how awareness, advocacy, and early intervention change lives. Please know that you and your child are not alone in this journey.

Thanks for being here!

Dr. E